using all the technologies and synergies that we can apply
to optimize archives, storage and consultation processes of the collected data

we build interactive web-based pages designed to collect data on phenotype, genotype, clinical manifestations, follow-up, treatment and related complications.

• Improve care, by increase standardization of therapeutic approaches.
• Optimize the contribution of public health services in the related territory.
• Enhance cooperation between centers dealing with similar disease all over the world.